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Avegail Jeane Puyo |
23/01/2010 |
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| Hi, my name is Avegail, and i am a caregiver of an infant with OI he is only 2mos. born last Nov. 19, 2009. I would like to know more about the management for OI and also to help his family with all my heart in all possible ways. |
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Tallulah Joubert |
27/05/2009 |
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| I think what you've done is absolutely amazing. So many people have children with diseases such as OI or MS... and never express with others what has been a huge help in their lives. I think it is so important to spread what we know about such things, help others get through their own hard times. You are great parents and I wish you and abby al the best! |
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| I really enjoyed looking at your website, I only wish the internet had been around when my son was born with OI Type IV in 1988. Life will have it's ups and downs, but you will all get through it step by step, my son is now at university, living independently 200 miles away, and having a ball, but hey that doesn't mean I don't still worry about him. |
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Arisnedy Sanchez |
04/01/2008 |
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| My son was born Jan 1, 2008 he was dx with oi. He is in the hospital doing a bit better but we are still here taking it a day at a time |
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Tracey and Jonathan |
19/05/2007 |
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| To Chris, Melanie, Matt and Abby - your strength and witness has been a testimony to all of us. Thank-you for your courage. Our prayers are with your family and especially Abby. |
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Roger Lou and Riley |
27/10/2006 |
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Hi Guys,
Was thinking about you. Riley is doing so well. Scar has completely healed and hair is beginning to grow. He has started moving around the house at speed now so we need to keen a careful eye on him so that he doesn't knock into too many things.
love Rog, lou and Riley |
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Patricia Minor |
20/09/2006 |
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| Hi to everyone, My name is patricia Minor and I have OI type IV. My brother has type III and my sister does not have OI. I have had around 100 broken bones and my brother has had between 300 to 400. I am also the Author of "WHAT LIFE IS LIKE LIVING WITH OI" which you can get more info on my web site http://freewebs.com/sputnik490.There is a blog-a-thon to take place to help get more awareness and to help sponsor the OI Foundation on 30 Sept 2006 for 48 hrs. On the site there will be a random drawing and the winner will get one of my books. I am donating 10% of my proceding off of my books that get sold in this time to the OI Foundation. We would appreciate all the help we can get. God Bless you all Sincerely Patricia Minor |
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Sandra Pretorius |
29/06/2010 |
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Hello Chris en Familie
Baie geluk met julle dogtertjie se 2de verjaarsdag. Hoop en glo sy het n fantastiese daggie gehad.
Glo alles gaan goed met julle.
Baie liefde
Sandra |
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Roger, Lou and Riley |
24/05/2006 |
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Thanks for the visit in hopsital. Great to meet you all. Looking forward to getting to know you guys better.
love Roger, Lou and Riley |
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Sandra Pretorius |
29/03/2006 |
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Hello Chris
Jong baie geluk met julle kleinding, sy is te pragtig. Sy lyk nogal baie na jou. Wees sterk en sit al julle geloof in die Here. Onthou net as julle julle volkome geloof in die Here sit dat sy sal volkome genees word, sal dit gebeur, en ek en my man glo saam met julle hoor.
Baie groete vir jou vroutjie en seun.
Liefde Sandra (Een van die Jacobs tweelinge) |
